March On

Hi,

Again, I’ve been slack in posting on the blog – so sorry.

We spent a lot of this last month of March focused on finding the best equipment that will help Andy be as comfortable as possible.  We had to have his hospital bed repaired (did you know we have a hospital bed now?), we got a new mattress, then another, then another. We now have the crème de la crème of mattresses (an air mattress) that is super comfy and has helped Andy’s back heal (well, it was helping – back to that in a moment). We’ve also been fitted for a custom wheelchair which we are excited about (did you know we use a wheelchair?) (only when we’re out and about, Andy is still walking around the house); we should get it in the next couple of weeks.  In case you’ve forgotten, Andy is a big dude, so, you can imagine the standard general wheelchair doesn’t really ‘fit’ him. And, as of tomorrow we will have a portable shower to use so Andy won’t have to make the difficult (and unsafe) climb up the stairs.

Medically, things had been going pretty well in March, until last Monday when oncology called and told us that our liver enzymes had spiked again and the number was over the acceptable level to be on chemo.  So, we’re off chemo for the time being.

In the last couple of weeks Andy’s sugar levels have spiked again so we’ve been in consultation with the diabetes clinic to get that under control.  Not to mention finding out the reason why.  I’ve been going over all of my notes and records and I think I’ve figured it out (crosses fingers).

And, as I eluded to before, Andy’s back had been healing very nicely, almost to the point of no pain at all.  Then, just this past Sunday, Andy simply stood up and, snap, something tweaked in his back and he’s now in pain – again.  Sigh.  %&^$#@!!

So, where are we now?  We are off chemo until further notice, we are being very cautious with Andy’s back, and we are awaiting our next MRI, which is the 2nd of April (then the follow up appointment for results on the 5th.)

That’s it.  That’s all.

Love you,

Lisa+Andy

xoxo

p.s.  We also wanted to thank everyone for the lovely birthday wishes and cards and gifts and dinners and attention and prayers and thoughts and wishes.  We are so lucky to have you all.